On the 6th of December 2013, just 3 days after our youngest child celebrated his first birthday, a very large tumour was discovered in Ben’s brain during a CT scan on his sinuses. Ben (AKA Johnda) had not shown any symptoms aside from some sinus pain that had been irritating him on and off for a few weeks that had led him to see his GP a few times. Pathology reports have shown that he has a mixed anaplastic oligoastrocytoma.
Ben is my best friend and my husband. He is a brilliant father, a wonderful brother, son, uncle, and friend. Our lives, and our children’s lives, have been drastically changed forever.
Neither of us knew much about brain cancer. It is something you hear about but automatically lump it in the “that couldn't possibly happen as we are too young” category. Little did we know that Ben is actually in the “right” age bracket for having brain cancer. Put very simplistically, you also tend to assume that you can just have some surgery, some radiotherapy and some chemotherapy and cancer is dealt with. That is not the case here. Treatment buys time, it is not a cure.
Soon after Ben’s diagnosis I started thinking about what we could do to help, what I could do that would be positive. I soon discovered the Cure Brain Cancer Foundation (formally known as Cure for Life Foundation) which was founded by internationally renowned Neurosurgeon Dr. Charlie Teo in 2001. CBC are the largest dedicated fundraiser for brain cancer research in Australia.
So with the help of my brother Shane, friends Jess and Lucinda, and my brilliant sister in law Kellie who created our logo, we started working on the idea of Johnda’s Joggers. This is my first “fun” run and I will be taking part in the 10 kilometre course.
Here are some facts....(from here: http://www.curebraincancer.org.au/page/8/facts-stats)
- Brain cancer is the leading cause of cancer death in adults under 40.
- It is also the leading cause of cancer death in children.
- In 2012, brain cancer only received 3% of federal government cancer research funding.
- Brain cancer has a very high mortality rate, and survival rates have hardly changed for 30 years, despite significant increases in survival for Australians diagnosed with other types of cancer, such as leukaemia and breast cancer.
- Brain cancer costs more per patient than any other cancer, yet only receives a small fraction of cancer research funding.
Please help me help CBC and the thousands of people living with brain cancer by giving whatever you can using the 'Give Now' button. The more people that know about Cure Brain Cancer Foundation, the greater the impact, so please also spread the word by sharing my page with your friends and family.
Thank you in advance for your generosity, it really means so much to me. And if you would like to join our team just send me an email at email@example.com. We would love to have you join us!